National Organizations and Recommended Web Resources

General Urology   |   Cancer   |   Incontinence   |   Interstitial Cystitis
Kidney   |   Prostate   |   Reproductive Health   |   STDs
Clinical Trials
General

American Foundation for Urologic Disease
1128 N. Charles Street
Baltimore, MD 21201
800.242.2383

American Urological Association
The professional association for the advancement of urologic patient care.

National Kidney and Urologic Diseases Information
3 Information Way
Bethesda, MD 20892-3580
301.654.4415
Email: [email protected]
NIDDK Health Information – Urologic Diseases
NIDDK Health Information – Kidney Diseases

The Digital Urology Journal
This links to the journal’s Patient Information Pages.

The Urology Page
A beginner’s guide to basic patient information on urology in easy to understand language.

Cancer (general)

American Cancer Society (ACS)
1599 Clifton Road, NE
Atlanta, GA 30329-4251
404.320.3333
Fax: 404.329.5787

National Cancer Institute
9000 Rickville Poke
Bethesda, MD 20205
800.4.CANCER

The Testicular Cancer Resource Center
Email: [email protected]
The Testicular Cancer Resource Center is a non-profit organization devoted to providing accurate and timely information regarding testicular and extragonadal germ cell tumors to anyone and everyone interested. We have information for patients, caregivers, family, friends, and physicians. We believe that our information and links are of the highest quality, and we are blessed with the support of some of the finest doctors in the field.

Incontinence

National Association for Continence
P.O. Box 8310
Spartanburg, SC 29305
800.BLADDER
864.579.7900

Simon Foundation for Continence
P.O. Box 835
Willmette, IL 60091
800.23.SIMON
800.237.4666
The Simon Foundation is a not-for-profit educational organization dedicated to providing assistance and support to those suffering from urinary incontinence.

Interstitial Cystitis

Interstitial Cystitis Association
110 North Washington Street, Suite 340
Rockville, MD 20850
800.HELP.ICA (4357.422)
Fax: 301.610.5308
Email: [email protected]
Support group assistance and information on inflammation or irritation of the bladder lining.

The Interstitial Cystitis Network
4773 Sonoma Highway, Suite 125
Santa Rosa, CA USA 95409
707.538.9442
Fax: 707.538.9444

Kidney

National Kidney Cancer Association
1234 Sherman Avenue, Suite 203
Evanston, IL 60202-1375
800.850.9132

National Kidney Foundation
30 E. 33rd Street
New York, NY 10016
800.622.9010

Prostate

Prostate Cancer Support Group Network
c/o American Foundation for Urologic Disease
300 W. Pratt Street, Suite 401
Baltimore, MD 21201
800.242.2383
Providing information on support group locations and resources.

US TOO International, Inc.
930 N. York Road, Suite 50
Hinsdale, IL 60521
800.80.US.TOO (87.866)
630.323.1002
Fax: 630.323.1003
US TOO is an independent network of support group chapters for men with prostate cancer and their families. One of their goals is to foster public awareness of prostate disease.

Reproductive Health

American Society for Reproductive Medicine (ASRM)
1209 Montgomery Highway
Birmingham, AL 35216-2809
205.978.5000
Fax: 205.978.5005
Email: [email protected]
The ASRM is an organization devoted to advancing knowledge and expertise in reproductive medicine and biology.

Resolve: The National Infertility Association
Resolve, The National Infertility Association has as its mission to provide timely, compassionate support and information to individuals who are experiencing infertility issues through advocacy and public education.

Sexually Transmitted Diseases

American Social Health Association (ASHA)
P.O. Box 13827
Research Triangle Park, NC 27709
800.230.6039
ASHA is a private nonprofit organization dedicated to the prevention and management of sexually transmitted diseases.

CDC National STD Hotline
800.227.8922
(Monday-Friday, 8 a.m. – 11 p.m., EST)
This information hotline is operated by the U.S. Centers for Disease Control.
Provides anonymous, confidential information on sexually transmitted diseases (STDs) and how to prevent them. Also, provides referrals to clinical and other services.

National Herpes Hotline
919.361.8488 (not a toll-free call)
(Monday-Friday, 9 a.m. – 7 p.m., EST)
A service of the ASHA’s Herpes Resource Center, this confidential hotline is staffed by trained counselors who will answer your questions about genital herpes or refer you to appropriate alternative sources.

Clinical Trials

Veritas Medicine is a free confidential resource providing access to clinical trials and information on treatment options.

The Centerwatch website is designed to be a resource both for patients interested in participating in clinical trials and for research professionals.

ClinicalTrials.gov
A service of the National Institutes of Health, Clinicaltrials.gov provides patients, families, and members of the public with easy access to information about the location of clinical trials, their design and purpose, criteria for participation, and, in many cases, further information about the disease and treatment under study. There are also contacts to individuals responsible for recruiting participants for each study.